Our Family
LPI, PAP, and our family
James
Purpose
This blog has been set up mostly to provide updates about the progress of James' health. I hope to be able to provide information about LPI and PAP and how the combination of these affect James and our family. In this way others in similar situations can be educated on what to do and expect. Although much of the blog will focus on James, we don't want to forget about how he functions within the rest of our family and so I'm sure you will also be able to get a general idea of how the entire family is doing.
Contact Information
Please feel free to leave us a comment or e-mail us at stephvmk at gmail dot com. We appreciate all comments, information, and assistance we receive.
Psalm 9:1,2
"I will praise you, O LORD, with all my heart; I will tell of all your wonders. I will be glad and rejoice in you; I will sing praise to your name, O Most High."
Hardcover Book of James' Story
If you would like to have a copy of this blog in book format for easier reading, although expensive, it is possible. To purchase James' Story in hardcover book format please follow the link below.
$79.99
AUTOPSY RESULTS
Our Family
Rob, Stephanie, Marietta, Rebecca, James, and Matthew
You can read how our life continues at:
LPI Information Sites
- Blog - November 28, 2006
- Blog - November 29, 2006
- GeneReview - LPI
- Wikipedia - LPI
- iHOP - LPI
- LPI - Genetics Home Reference
- Lysinuric Protein Intolerance Yahoo Group
- Humpath - LPI
- Pulmonary Manifestations in LPI
- JCI - LPI and renal handling
- Intestinal absorption in lysinuric protein
- Journey of Neurology - LPI
- Pub Med - LPI and lungs
- An LPI case
- Historical Aspect of LPI
PAP Information Sites
Information Sites
- chILD Foundation (Children's Interstitial Lund Disease)
- National Urea Cycle Disorder Foundation
- Breathing is Life
- Bronchoscopy
- Bronchoscopy - Wikipedia
- BAL (Bronchoscopy) - Wikipedia
- Pari Nebulizers
- Nebulizer
- Colitis
- Colonoscopy - Wikipedia
- Esophagitis
- Aspiration - Wikipedia
- 24 Hour PH Probe
- KidsHealth
- Medical Helper - Colitis
- Crohn's & Colitis Foundation of America
- American Lung Association - Interstitial Lung Disease
- Univ of Michigan - PORT
- KidsHealth - Growth Charts
- Specialty Food Shop
Low Protein Information and Recipe Sites
- Protein Food Data Charts
- Fruit Nutrition Facts
- lowprotein.com
- University of Washington - PKU Recipes
- SHS Internation: PKU Recipes
- Michigan PKU - Recipes
- IPF - Recipes
- Recipes - PKU Organization of Illinois
- Mandy's Low Protein Food Source
- Ener-G Foods
- My Special Diet - SHS North America
- Dietary Specialties
- Taste Connections
- Cambrooke Foods
- Kingsmill Foods
2 comments:
Just wanted to say Happy Birthday, Marietta!! And love the family pictures! So nice to see the happy times too.
Bert & Judy
Nice shots! I recognize those spots...they are by our first house and I used to walk there with Robyn all the time! Lovely.
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