GJ Tube?
Last night James was taken off his continous feeds at 12am and put on IV in order to be prepared for his bronchoscophy today. If all goes well he's scheduled to go at 1pm today for both the bronchoscophy and the CT Scan. The bronchoscopy will be done in PICU, so if a room is no longer available we will be unable to do the test.
At 12am we stopped James feeds. From 12am to 2am his SATs dropped off and on ... long enough to get a strip for qualifying for Home Oxygen .... until they realized that after it drops for 2 minutes they have to have another 3 minute strip showing that putting him on oxygen helps. So they reset up the machine and got the oxygen ready for the next time it dipped ... but it didn't dip again. Two hours after finishing his feeds it came back up into the 95-98% area and there is stayed the rest of the night.
Coincidence? We'll have to test it out and see, but since we know James' has reflux it could be that the continous feeds have been the reason for our nighttime SATs drops. Considering the fact that we slowly increased the amount of his feeds so that he doesn't have to be hooked up as long, it falls in line that we started having more SAT problems once the feeds became larger at nighttime. If this ends up being the answer then we will have no choice but to change James to a GJ tube (tube inserted just past the stomach into the intestine). Not what we wanted to do, but if it means healing his lungs then it's worth the inconvenience.
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