Catching Up
Well James has been doing a good job on catching up with his lost weight. Today we had a Dietician and OT (Occupational Therapist) visit and James weighed in at 10.06kg (22lbs 30z), gaining 14oz in the past week. We were happy with this progress, we could really see that he was getting back up there as his face was filling out again. we were a bit overdue for a height check, so it was no surprise that he added some on height, now being 84.5cm (33 inches), last height we had was the end of October at 81.8cm.
James continues to have excellent eating habits, even making it more challenging at times because he really wants what we have, especially the meat, and cries up a storm when told no. I'm going to have to work harder to make imitation meals instead of just feeding him pre-made frozen food. He still goes to the cupboard throughout the day asking for food. I think he ate himself sick of Rice Krispies because he hasn't asked for them anymore, instead he'll eat Captain Crunch (which is actually better for him), but not near as much as the Rice Krispies since he has to actually chew those. His preference for meals continues to be towards his imitation rice. Each meal must has a side of salad dressing or ketchup. He has always like to eat these, just plain, like soup, but lately he's been eating so much that it's rather sickening. He also loves to eat his imitation cheese slices and pureed strawberries.
We are still of the assumption that he is just catching up and in the next week or so these eating habits will disappear. James currently gets about 1100ml of formula per day by g-tube, but the goal for him is 1300ml. He has been gaining fine on the 1100ml so there is not a huge push to increase the feeds, we are suppose to work slowly at it. The dietcian has suggested that we do NOT try to increase the volume of his feeds anymore and see what happens. It is also possible that his daily calorie intake has increased (it has been over 5 months since his original intake goal was set) and he may continue to desire to eat if we don't give him the full amount by g-tube. We'll see what the next couple weeks bring.
At 2 years old James finally outgrew the playpen. We've been struggling to keep him in it the last couple weeks but I finally gave up and packed it away yesterday. Now we start the new challenge of figuring out how to keep him occupied during feeding times. I replaced the playpen with a toybox, gated off the doorways and added an 4ft extension to James feed tube, now he is able to get around the majority of the dining room and play in there while his feed finishes. Worked good today.
Santa has come and gone for another year. We had a nice time on Saturday at my parents. James also received a few more birthday presents ... so he has lots to keep him entertained when I lock him in the dining room.
Rebecca models her new wig - to be added to the dress-up collection
James continues to have excellent eating habits, even making it more challenging at times because he really wants what we have, especially the meat, and cries up a storm when told no. I'm going to have to work harder to make imitation meals instead of just feeding him pre-made frozen food. He still goes to the cupboard throughout the day asking for food. I think he ate himself sick of Rice Krispies because he hasn't asked for them anymore, instead he'll eat Captain Crunch (which is actually better for him), but not near as much as the Rice Krispies since he has to actually chew those. His preference for meals continues to be towards his imitation rice. Each meal must has a side of salad dressing or ketchup. He has always like to eat these, just plain, like soup, but lately he's been eating so much that it's rather sickening. He also loves to eat his imitation cheese slices and pureed strawberries.
We are still of the assumption that he is just catching up and in the next week or so these eating habits will disappear. James currently gets about 1100ml of formula per day by g-tube, but the goal for him is 1300ml. He has been gaining fine on the 1100ml so there is not a huge push to increase the feeds, we are suppose to work slowly at it. The dietcian has suggested that we do NOT try to increase the volume of his feeds anymore and see what happens. It is also possible that his daily calorie intake has increased (it has been over 5 months since his original intake goal was set) and he may continue to desire to eat if we don't give him the full amount by g-tube. We'll see what the next couple weeks bring.
At 2 years old James finally outgrew the playpen. We've been struggling to keep him in it the last couple weeks but I finally gave up and packed it away yesterday. Now we start the new challenge of figuring out how to keep him occupied during feeding times. I replaced the playpen with a toybox, gated off the doorways and added an 4ft extension to James feed tube, now he is able to get around the majority of the dining room and play in there while his feed finishes. Worked good today.
Santa has come and gone for another year. We had a nice time on Saturday at my parents. James also received a few more birthday presents ... so he has lots to keep him entertained when I lock him in the dining room.
Rebecca models her new wig - to be added to the dress-up collection
Marietta and cousin Taryn
Hanging out, watching Dad's (Grandpa's) prize gift ... The Three Stooges
1 comment:
james is EATING??? way to go James!!! hurrah! hopefully he'll keep it up! and happy belated birthday too... :)
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