Friday 30 March 2007

GI Appointment

Todays' visit to the GI Doctor went much as I expected, not really telling us anything new since most of that was worked out last week. The one thing I did learn from this visit is that they are having their "Meeting of the Minds" this afternoon. I see our pediatrician on Tuesday, so we'll see if anything comes of that.

The results of the endoscopy showed that James has some mild reflux related esophagitis. It is interesting to note that we waited 6 months for this test. It was originally booked in November at which time it was cancelled because of James' continuous unexplained fevers. At that time they also told us that having the endoscopy done would not help us to figure out what the cause of the fevers were and so they felt no reason to put him on the fast-track list. I feel they were wrong here. If this test had been done in November we would have known that James shows signs of esophagitis. For the past three months we have been going through a rollercoaster of trying to figure out his fevers, runny nose, and coughing and unstability. In November we had no idea that James even showed any signs or possibilities of having reflux, it was an unheard of thought. Had we known he had reflux related esophagitis we would have sooner been able to pinpoint some of the reasons for James' unstability . It took us until February to put together that he had "silent" reflux ... by closely monitoring his symptoms, which had been getting worse and worse up until then. If they had know he had reflux they would have sooner been able to question whether his lung issues - his coughing and gagging - were related to the reflux issues. But this is neither here nor there now and we must remain thankful that after one year the puzzle continues to slowly be put together to help our boy grow healthy and strong.

The PH Probe Test also indicated that James has acid coming up throughout the day. Bear in mind that James had a good day the day of the test (coughing episode wise), as well he did not touch any solids. I was surprised that we got any results at all out of this test. They also said that they did not see any connection with his coughing (he only had two short episodes, which seemed more from discomfort then like his normal episodes) and reflux.

One thing I did get out of the visit was that I can increase the amount of probiotic we are giving James. I was unsure of how much to give him, but he advised that instead of just giving it once a day I can give it twice a day. It's really hard to say if this has helped any, there have been too many things happening to tell us.

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