We're home!!

The good news is that James had his endoscopy and broncoscopy done today and that we're home tonight and I get to sleep in my own bed ... and I'm going there nice and early ... ahhh sleep ...zzzz!! The bad news is that James' g-tube did not get changed today as it was suppose to.

We were up and going on time today since we had to have Marietta at the ortho/dentist by 8:30, the 2nd time this week due to her appliance breaking. James did well today, considering his tests were not until 2pm and he could not eat before or afterwards. He was allowed 8oz of water this morning before 10am, but by 10:30 I had a cranky, tired looking boy who had been asking for crackers since 9:30am ... when James' ask for food you know he's good and hungry. Thankfully Barney's a pretty good entertainer and he got to watch a bit of extra TV today.

James was tired enough that he fell asleep on the way there, a little 10 minute powernap. When he woke he knew right away where he was and asked for Daddy. The nap and the playroom kept him entertained for a while but then we ended up sitting in an empty hallway with nothing to do for an hour before his procedure. By that time he was tired, miserable, hungry and thirsty ... lots of fun. When they came to get him he was all eager to go but stopped dead in his tracks when he stepped into the room, one look and he knew what was going on ... the tears came quickly. To make it worse they decided that it was best to put him down via IV instead of using the mask because of his reflux ... a more painful and much slower process ... poor guy.

Just before the procedure I found out that they were not planning to do the g-tube ... or should I say they had no idea about it. I was not a happy camper and they got to hear about it too. The g-tube change was listed on the pre-op forms as well as on the consent form for the endoscopy, if they could read they would have questioned it sooner and looked into it. They said they would proceed with the other tests and track down surgery and see what could be done. They came back then to say that their was no surgeon available and that the surgeons nurse tried to blame it on the GI department saying that they had not told her the date he was going to be sedate. I had spoken to her TWICE to confirm that everything was a go for today ... needless to say she's gonna be getting an earful tomorrow!!!!!!

Let me point out this is the 2nd time that this has happened. In November when James was originally booked for his endoscopy (that got cancelled due to fevers) it was also realized that surgery was not prepared to do the g-tube change. In the end it didn't matter since the procedure was cancelled ... but hence the reason I checked twice this time to make sure it was a go. So now we get to hear all the promises again ... he has a CT Scan next month they will make sure it's done then. Looks like I'll have to call everyday for a week before hand so that they get so annoyed they don't dare not show up. Yup, I'm a little ticked!!

James came out of sedation typical James style ... crying and screaming, throwing himself all over, crawling out of my arms and just inconsoleable. They were not busy in the recovery room this time and so I had three nurses hoovering over him try to figure out how to calm him down ... even tho I kept telling them he does this every time (why do they think I hate going through this time and again??). They gave him some gravol but it didn't help, after about 45 minutes of this and no improvement they gave him some morphine and 5 minutes later he was peacefully asleep. The tests were done by putting a flexible tube down his throat, which makes it raw and sore, so you can imagine how sore his throat would be after all the crying, it sure sounded raw and sore. Once he settled down his SAT (oxygen) levels came back up into normal range and he did fine. They woke him an hour later to check him over and he was drowsy but back to normal. He was transferred back to the Same-Day Surgery department where we had to hang around another hour just to make sure all was well and then they sent us home.

James has not been sleeping as good as we hoped lately. He is not having coughing, gagging or vomitting fits anymore, but he has been waking during the night. He also seems to have a slight cold so at this point we're hoping it's just his ears waking him. So I'm hoping he'll sleep good tonight because I'm good and tired. Gotta be up and going on time again tomorrow since I have to make a visit to Mac for an ultrasound and OB appointment. We started James on a feed of pedialyte when we got home and now he's having 3/4 pedialyte and 1/4 formula. I hate to desert him tomorrow morning, but he seems to be tolerating his feeds so far, so hopefully I can give him a half decent feed before I go tomorrow.

But ... it's not to early anymore ... but not so late yet either ... so I better get my butt off to bed before it gets late again.