Family Meeting
James has recuperated from the pneuomothorax that he had on Sunday. They clamped the chest drain tube yesterday and this morning removed the tube. So far all looks well in that area.
It appears that James' battle is getting more difficult. The amount of oxygen assistance he needs continues to increase (now around 75-80%) and his x-rays are not showing improvment. Once again we are faced with the reality of the situation - James is not getting any better, there are no further options, and the technology we are currently using is not helping him to get better.
In light of this we had a "Family Meeting" (or so they call it) today with various doctors, the social worker, therapists, etc in order to decide how best to proceed.
They have started James on another three day Pulse Dose of MethylPrednisolone as it is felt that the last time we did this he did improve. The aim is once again to give him enough edge in order to extubate him. At the end of this Pulse Dose if his numbers are good they will attempt to extubate again.
We continue to pray the Lord will guide us in the right direction during these difficult days.
17 comments:
Dear Rob & Steph
What shall we say? You are being lifted continually in prayer before our Loving Father's throne.
We pray that indeed He will give you strength, wisdom and the peace that surpasses all understanding when you face difficult days.
Love, Al and Diane
We continually pray for your family, that our Lord will give you the strength and peace to deal with this all, as he has promised He will do.
Brad and Deb
Dear Rob, Steph and family,
May you be comforted with the knowledge and confidence that God will surely be your Strength. We are praying for you and your family. John & Johanna Homan
Dear Rob and Steph,
You are so much in our thoughts and prayers. May God continue to be your comfort and guide.
Love,
Gerald and Carmen, JALMEWBGT
We will continue to pray for much strength, comfort in these very difficult days! Your always in our thoughts! ((HUGS))
Ps.121
Rich and Tracey Stam
We are holding you in our prayers. May our gracious God continue to uphold you and grant you much wisdom and peace.
Paul & Wilma
We, too, continue to remember you and your family in our prayers.
May the God of all comfort surround you with His loving arms and constantly strengthen you in these difficult times.
Arend and Willa Dale
We know God is hearing all our prayers. Let's all just keep on praying!
ALice
We also continue to remember you in our prayers.
Rob and Trish Smink
(Still) praying for strength and wisdom for you as parents, and for little James who endures so much.
The Noots
What a mixed bag of news...its a relief to know James has recuperated from the pneumothorax, but disheartening to see his lungs require more and more oxygen support. We hope the Pulse Dose will help improve that.
We pray that James is not suffering too much, and if he is, that it won't be long. We commend him into the care of the Great Physician, who in His time, and in His way, will cure all things for James!
With love,
Ike & Heather
Anna, Scott, Andrew & Ryan
We too continue to pray for all of you as a family, that you all will receive peace and strength as you begin every day! Continue to lean on Him...
Henry and Julia Meerveld.
We pray for guidance as you face new and more difficult decisions around every corner.
Dear Rob & Steph
We continue to pray for you and James, even when we don't know which words to use.
The LORD is faithful-keep looking to Him!
All our love,
Pete & Ingrid
Frank, Garrett & John
Praying that God will give you all that you are in need of in the days ahead.
Matt and Sarah Bartels
We continually pray for you all, may the Lord give you what you need in the difficult days ahead.
All our love: John & Martha
ZLDDJTJWL
Rob and Steph. Please know that we all hold you close to our hearts in prayer. All our best as you persevere.
The Vanderhouts
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