Good-bye Room

Today we seen James' name wiped off the front board on the Ward indicating that the room is no longer his.  We were told that tomorrow they will have enough staff to fill all the rooms and so they are required to fill it and we will likely have to move out in the next day or so.

 

We knew this would come and are surprised we managed to hang on to the room this long but that doesn't make the idea any easier.

 

So good-bye bed, good-bye bathroom and shower, good-bye phone line, good-bye computer (the battery only lasts 5 minutes and I have nowhere to charge it anyways ... nevermind I won't have a window to pick up the occasional wireless signal) ... most of all good-bye nice private place away from the eyes of everyone else.

 

It's funny how hospitals make the most stressful time of your hospital stay even more stressful by having either find accomadations ($$ in TO) or live in a waiting room, where they kindly provide you with a small locker and blankets so you can crash out on the couch ... and somehow tune out all the noise around you (definitely not going to happen during the day when it's full of people).  But that's how all hospitals work and so we I guess we just have to remain thankful for the days that we managed to have some privacy and get some sleep.  If we lose our we will talk to the appropriate people to first find out if there is any parent rooms available (we've seen a few, but not very many, and always with names on the door) before we decide what we'll do if not.  I'm told the Ronald MacDonald Houses are also hard to get into, plus they are not exactly right next door to the hospital.

 

That being said our blog entries may become more sparadic as the parent resource centre where you can access the internet has terrible hours and only a few computers, but we'll try our best to remain faithful ... seeing as we also won't have a phone to be reached at anymore.  The head nurse told us to cross our fingers that someone calls in sick tomorrow and they can't fill their rooms ... so our fingers are crossed.

 

James continues to have fevers.  He had a restful morning where his numbers all looked good and his fever was gone, but as the day progressed so did the fever and as I left at midnight he was again spiking a 40C. We are now 24 hours into the antibiotics, if no change in the next 24 hours we confirm that the bacteria is not the source of the fevers ... which is our feeling already, just knowing James, but we still pray that it's simply an infection.  Over the last months James oxygen requirements slowly increased and so did his temperatures ... we begin to wonder ... is this the new "norm" for James?  It's a scary thought!!  We pray it is not.  The one positive thing about today is he required less suctioning, but I'm not sure how positive that is in light of the fact that they had to increase the amount of  oxygen he's getting and the assistance they give to his lungs to keep functioning as they should.

 

Good night all ... zzzz