Nighttime Fevers

So we're back into the nighttime fevers again. We've been doing good for the last bit, three weeks with no fevers ... probaby the longest straight no-fever period we've gone. This time we're only see fevers during the night, during the day he has ups and downs - fine for awhile, cranky and clingy for awhile. Today he had a really good day, energetic and playing nice, looking better also ... maybe we'll be done with this round quickly :) and then some good sleep again :)

We had thought that the good stretch is due to the fact that his lungs are finally somewhat more under control. The Losec is controlling his reflux, keeping him from aspirating into his lungs. This should be keeping the food out of his lungs and bacteria infections under control. So our biggest battle is getting rid of the inflammation, which the Prednisone is suppose to be doing. With him doing well and remaning healthy we would be able to get a good idea at the end of the month whether the Prednisone is actually helping. This may throw a loop into that.

It becomes a question of whether we just have to accept that unexplained fevers are a regular part of his life, or whether we have to each time question "now what is this all about?". This time we see a new symptom, which started a few days before the fevers, he has had these little "coughing" spells ... more like he's clearing his throat and he's uncomfortable and says "hurts". These happen mostly in the evening or at nighttime. So we're thinking that his reflux is acting up again, but before we go running off to the doctors again we have to give it a fair chance to clear on it's own ... but while we're giving it a fair chance we're losing more time out of our "fair chance" of no interferences on the Prednisone, a drug we really don't want to be on any longer then we need to.

But hey, maybe how he was today is a sign of how he'll be tonight ... I'm hoping ... because I've really gotten to liking undisturbed sleep and spending the whole night in my bed (yes I know that will all change regardless soon). We've noticed how James really likes the full nights of sleep too, ever since he's been sleeping thru the night he's decided that he really doesn't need to sleep as long ... getting him to sleep by 9pm is a challenge and he's full of energy and ready to go again by 6/6:30 am ... plus he's decided to shorten his naps from 2 hours to 1 hour.