Today's Story

Much to our surprise this morning when they did rounds they told us that not only could we have an overnight pass, they figured we could have a 48 hr pass. Considering they haven't gotten to the bottom of this "owee" James has, which has been getting worse instead of better, we were suprised that they thought we could still go home.

That plan changed quickly when they went to arrange our pass. Supposedly 48 hour passes are no longer allowed, nor are overnight passes. Apparently if you are well enough to go home overnight you should be discharged. Funny how the doctors know nothing about this change ... makes you wonder, but we won't get into that. We were given a choice: be discharged today and come back Monday afternoon or stay. Well that was a pretty easy decision ... we're staying. We know all to well how easy it would be to get our bed back on Monday ... never mind the whole hassle of packing up, emptying our room, going thru discharge routine and then having to unpack and go thru admission routine again. It's nice to be home, but not that necessary. At the same time they warned us that now that the request was made to go home it could be that they may want to force a discharge if they need the bed seeing as we were apparently well enough to go home for a couple days. Well ... force they will have to do because we won't be leaving on our own. From a paper perspective James is stable respiratory wise. We can't argue with that, since we arrive he has done better, altho still required 1.5 to 2.5L of oxygen ... but he hasn't gotten worse. The reason for that ... he sits in a bed all day and does nothing. Each time he has gotten too excited or active he's thrown up and/or deSATed. It would be interesting to keep him in bed all day at home ... we would be back in Emerge pretty quickly. So we're not going home.

At the same time they're doing there best not to promise anything for Tuesday. Basically it will be the same as on Monday. They've requested and somewhat lined up OR time as well as "booked" a ICU bed ... but James is not considered an Emergency yet, just High Priority, so we can still get bumped. The joys of our healthcare system.

GI came by yesterday and went over James' situation in great detail, so far I was impressed. The Team told me today they are looking to change his formula. They did not come by to talk to us today yet, so I haven't heard the official word yet. We haven't gotten any more word, help or info on why James' keeps complaining about owee's. The first urine test was fine, but we did another one today, just in case. The blood culture they did the other day isn't back yet, but they don't really expect an answer in that. So we're at a standstill in that area ... and it being the weekend ... well we know how that goes.

But I must head back to the room. Usually I leave once James is asleep, but my little visitor - Matthew - was not all too quiet, so I left James with the instructions to take a nap while I tried to walk Matthew to sleep ... which hasn't been successful yet. As much as I miss Matthew (and the girls of course), I'm so glad he's NOT a nursing baby. I think I would go nuts if I was trying to take care of both of them every day. But a one day visit is quite nice ... I'm allowed to spoil him then :) It's almost like being a Grandma, I can spoil him for the day and then hand him back over at the end of the day :) Oh and look ... he just fell alseep in my arms.